On Wednesday, May 18, at 10 a.m., Philadelphia College of Osteopathic Medicine (PCOM) will be the next and final U.S. stop for the Kennedy’s Disease Association’s (KDA) “Great Road Trip,” a transcontinental awareness campaign in a refurbished 35-year-old, 29-horsepower Citroen 2CV. A city of firsts, the genetic mutation for Kennedy’s Disease was discovered in Philadelphia in 1991.

Kennedy’s Disease, or spinal and bulbar muscular atrophy (SBMA), is a rare, genetic neuromuscular disease most often diagnosed in adult males between the ages of 30 and 50. An estimated 1 in 40,000 individuals worldwide has Kennedy’s Disease. Several leading researchers in the region, including PCOM Associate Professor of Neuroscience, Physiology & Pharmacology Heather Montie, PhD, Diane Merry, PhD, Thomas Jefferson University, and Lauren Elman, MD, Penn Medicine, continue to conduct extensive studies on Kennedy’s Disease, its causes, and possible treatments. The Great Road Trip is being conducted by KDA and KD-UK.

The Great Road Trip began in Los Angeles in April and will end in Rome, Italy, in July. The total distance covered will be 4,300 miles in the U.S. and Canada and 2,300 miles in Europe.

The Citroen 2CV, affectionately known as the “Tin Snail,” was manufactured from 1948 to 1990 and is a cult car in Europe.

WHAT:             KDA Great Road Trip

WHEN:             Wednesday, May 18, 2022

10:00 a.m.

WHERE:           Philadelphia College of Osteopathic Medicine

                          4170 City Avenue

                          Philadelphia, PA 19131

(Use Monument Road entrance between Meta Christy House and 6ABC to PCOM traffic circle)

WHO:              Heather Montie, PhD, PCOM

                         Diane Merry, PhD, Thomas Jefferson University

                         Terry Thompson, President, Kennedy’s Disease Association

About the Kennedy’s Disease Association

Kennedy’s Disease Association is a non-profit 501(c)(3) organization working to inform, support, educate, and fund research towards finding a cure for Kennedy’s Disease. For more information, visit the KDA website at Home (kennedysdisease.org).

About Philadelphia College of Osteopathic Medicine

Founded in 1899, Philadelphia College of Osteopathic Medicine (PCOM) has trained thousands of highly competent, caring physicians, health practitioners and behavioral scientists who practice a “whole person” approach to care—treating people, not just symptoms. PCOM operates three campuses (PCOMPCOM Georgia and PCOM South Georgia) and offers doctoral degrees in clinical psychology, educational psychology, osteopathic medicine, pharmacy, physical therapy and school psychology, and graduate degrees in applied behavior analysis, applied positive psychology, biomedical sciences, forensic medicine, medical laboratory science, mental health counseling, non profit leadership and population health management, organizational development and leadership, physician assistant studies, school psychology, and public health management and administration. PCOM students learn the importance of health promotion, research, education and service to the community. Through its community-based Healthcare Centers, PCOM provides care to medically underserved populations. For more information, visit pcom.edu or call 215-871-6100.


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